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DOCTORS FEELING LIKE ROBOTS
I found this article on Health Management Technology. It is another article about Physicians being more and more dissatisfied. Take a good look....
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AM I LUCKY?
Here is another article about how young people with chronic illnesses are treated. There is no understanding or respect. This woman’s illness is not completely invisible. I thing that I would notice...
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DON’T CHILDREN WITH A RARE DISEASE DESERVE FAIR TREATMENT?
I am sharing this story about two beautiful little girls that are fighting a rare disease. If a disease is considered ‘rare’, research is probably going to be impossible to fund. Who would want to do...
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WHAT WOULD YOU DO?
I came across this video that I want to share with all of you. It is about a rare disease and how difficult it is to find funding for research on the disease, find medications that could help these...
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Self Empowerment
pattyalcala:Stay Positive! Even in the hard times. Originally posted on Send Sunshine: View originalFiled under: I AM NOT SICK BOY
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We’re All Afraid
We’re All Afraid.Filed under: Blogs, GRIEF, I AM NOT SICK BOY Tagged: Children, Chronic Illnesses, Fear, Grief, Hospitals, I AM NOT SICK BOY
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…and sometimes a smile is all that we need #1000speak #Compassion – Guest Post
pattyalcala:Maybe you could be a mom’s angel today. Originally posted on Taking it a Step at a Time - Autism: Compassion comes in many forms and at times just the smallest thing – a glance or a smile...
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TO IMMUNIZE OR NOT TO IMMUNIZE
I feel so out of the loop. I suppose when the Disneyland disaster with the children acquiring measles was going on, my mind just didn’t grasp what was happening. Don’t get me wrong. I understood...
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THERE IS NO ‘I’ IN TEAM
lI read this article this morning that truly struck me. The author, Anet, wrote about being a patient and a self-advocate at the same time. All of the feelings that I felt during those years of...
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IT ISN’T WHAT IT’S CRACKED UP TO BE!
I am a huge fan of Dr. Pamela Wible! She is telling the world what no one wants you to know, that there is a huge problem with our healthcare system! If you have followed my blog for any time at all,...
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Patient Can Be A Loaded Word
pattyalcala:This is a must read! Originally posted on AS I LIVE & BREATHE: The announcement of this year’s theme for NORD‘s (National Organization for Rare Disorders) Rare Disease Day 2016 gave me...
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AS ABBY WAITS
I came across this article this morning and wanted to hug this young lady and tell her that everything would be alright. The fact is there isn’t anything that anyone can promise her. She continues to...
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Family Voices
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make...
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CHRONIC ILLNESSES AND PETS
I read this article this morning and it brought back so many memories! At first blush, they were thoughts of anger for the people that would treat my sweet Alex with such contempt. He kept his pain,...
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HAPPY NEW YEAR!
Today is January 1, 2016. It is a day like any other day. The sun shines through my bedroom window, my birds twitter and flit with excitement and I sit at my desk collecting my thoughts, wondering what...
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5 Helpful Tips to Help Children Manage Stress | World of Psychology
I read this article this morning and thought that it would be a great tool for the families of children with complex health issues to have in their back pockets. These kids are anxious about so many...
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Sobering numbers concerning children, poverty and race in America – Health –...
Recently I have been learning about the disparities between the affluent and poor children in the United States. It shows up in their health, education and their futures. Children must be our first...
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